(1) To capture researchers’ experience with patient and other stakeholders engagement in research, (2) to describe the role of patients and other health care stakeholders in research projects, and (3) to describe engagement in research from the researcher point of view.
To record and provide evidence of involvement activities in a document that can serve patients, recruiters, and/or evaluators.
Consist of a participant survey, pre-, and post-initiative interview questions to evaluate the use of in-person focus groups and online engagement within the context of a large public engagement initiative conducted in rural Newfoundland.
Based on the principles of community-engaged research this tool aims at quantitatively measure community engagement participation in health research.
To find out about the range of contributions that lay members are able to provide on Research Ethics Committees.
to track the impact of public involvement in research in this sample from project inception through to completion where possible and, at a minimum, for complete stages of the research process (design, recruitment, data collection, analysis, dissemination), and to identify the desired outputs and outcomes of public involvement in research in the sample from multiple stakeholder perspectives (e.g. members of the public, researchers, research managers).