
GOAL
The goal of the International Summit on Patient and Public Partnership (ISPPP) is to create a unique forum to discuss the current state of patient partnership in (direct) care and outline a common vision for health (system) transformation anchored in a model of partnership.
1st International Summit on
Patient and Public Partnership
2-3 may 2019
Centre Sheraton Montreal Hotel – salle drummond
1201 rené lévesque blvd w, montreal (QC)
07h00-08h00 | BREAKFAST |
08h00-08h15 | INTRODUCTION & WELCOME Hélène Boisjoly, Dean of Medicine of Université de Montréal Fabrice Brunet, CEO of the Centre Hospitalier de l’Université de Montréal |
08h15-08h30 | OPENING REMARKS Vincent Dumez, Co-Director of the Centre of Excellence on Patient and Public Partnership |
08h30-09h30 | KEYNOTE PRESENTATION “How the digital revolution is over-turning dynamics in health?” SPEAKER Robert Califf, Former United States Commissioner of Food and Drugs (FDA) and Senior Advisor for Verily Life Sciences (Google) FACILITATOR Jean-Lucien Rouleau, Former Dean of Medicine, Université de Montréal |
09h30-09h45 | HEALTH BREAK |
09h45-11h15 | PANEL DISCUSSION “The future of partnership in direct (clinical) care” FACILITATORS Mario Di Carlo, Patient Partner, Centre of Excellence on Patient and Public Partnership Louise Clément, Executive Director, EQual Canada (Health Education Accreditation) PANELISTS Angela Coulter, Senior Research Scientist, Oxford University Nicolas Fernandez, Patient Partner & Assistant Professor, Université de Montréal Camille Orridge, Senior Fellow, Wellesley Institute Lesley Steinman, Director and Former Chair, Evidence-Based Leadership Council Karl Swedberg, Scientific Advisor, University of Gothenburg Centre for Person Centred Care (GPCC) |
11h15-12h30 | OPEN SPACE THINK TANK “The future of partnership in direct care: what’s changed and what are the key success factors to improve or reach partnership in the next 5 years?“ |
12h30-13h30 | LUNCH |
13h30-14h00 |
PRESENTATION |
14h00-15h30 | PANEL DISCUSSION “What engagement levers are needed to accelerate change and to reach success in direct care?” FACILITATORS Thomas Sannié, Patient Partner and President of the Association française des hémophiles Philippe Karazivan, Co-Director, Centre of Excellence for Patient and Public Partnership PANELISTS Kristin Carman, Director of Public and Patient Engagement, Patient-Centered Outcomes Research Institute (USA) Simon Denegri, National Director for Patients and the Public, National Institute for Health Research (UK) Angela Morin, Caregiver Partner, Canadian Foundation for Healthcare Improvement Antoine Payot, Director, Clinical Ethics Unit, CHU Sainte-Justine Tessa Richards, Senior Editor, Patient Partnership, British Medical Journal |
15h30-16h45 | OPEN SPACE THINK TANK “Levers of change: What engagement levers are needed to accelerate change in direct care and to reach partnership in the next 5 years?” |
16h45-17h00 |
SYNTHESIS, DAY 1 |
17h00-18h00 | FREE TIME Transport to the Cocktail networking event at the Société des arts technologiques (SAT) Society for Arts and Technology (SAT) 1201 Saint-Laurent Blvd Montreal (QC) H2X 2S6 |
Société des arts technologiques (SAT)
1201 Blvd St Laurent
Montreal, QC
18h00-18h30 | ARRIVAL OF GUESTS |
18h30-18h45 | WORD OF WELCOME Caroline Wong, Executive Manager of the Centre of Excellence on Patient and Public Partnership |
18h45-19h15 | SCREENING OF SHORT FILM IN PARTNERSHIP WITH GREG’S WINGS Falling Through the Cracks: Greg’s Story “Falling Through the Cracks: Greg’s Story is a short film on Greg Price’s journey through the healthcare system. The film gives a glimpse of who Greg was and focuses on the events of his healthcare journey that ended in his unexpected and tragic death. In spite of the sadness of Greg’s Story, the film is intended to inspire positive change and spark conversation about our healthcare system. We believe Falling Through the Cracks: Greg’s Story is more than a movie and that it will trigger a movement.” Produced by Greg’s Wings Projects |
19h15-20h00 | DISCUSSION ON THE FILM Facilitated by: Teri Price, Co-Founder and Executive Director, Greg’s Wings Projects |
20h00-21h00 | NETWORKING |
* Please note that food and non-alcoholic beverages will be served during this event. Alcoholic beverages will be available at the cash bar.
07h00-08h00 | BREAKFAST |
08h00-08h15 |
DAY 2 OVERVIEW |
08h15-08h45 | PRESENTATION “Integrated transformation: Patient partnership in Learning Health Systems” Denis Roy, Vice President, Science et gouvernance clinique, Institut national d’excellence en santé et en services sociaux |
08h45-10h15 | PANEL DISCUSSION “Integrating partnership” FACILITATORS Vincent Dumez, Co-Director of the Centre of Excellence on Patient and Public Partnership Marie-Pascale Pomey, Chairholder, Chair in Advanced Technology Assessment and Modalities & Co-Director of the Centre of Excellence on Patient and Public Partnership PANELISTS Julie Drury, Chair, Minister’s Patient and Family Advisory Council, Ontario Ministry of Health and Long Term Care Yann Le Cam, Family Member, Patient Advocate, CEO, EURORDIS – Rare Diseases Europe Yves Savoie, CEO, Heart and Stroke Foundation of Canada Jennifer Zelmer, CEO, Canadian Foundation for Healthcare Improvement Philippe Michel, President and Founder, L’Institut français de l’expérience patient and Director of Quality, Centre Hospitalier Universitaire de Lyon Julia Abelson, Professor, Department of Health Evidence and Impact, McMaster University |
10h15-10h30 | HEALTH BREAK |
10h30-11h45 | OPEN SPACE THINK TANK “Integrating Parternship: How do engagement levers of change integrate into the transformation of health system(s)?” |
11h45-12h30 | INTERNATIONAL SUMMIT CLOSING CIRCLE “Summary and collective action planning” Ghislaine Rouly, Patient Partner, Centre of Excellence on Patient and Public Partnership Antoine Boivin, Chairholder, Canada Chair on Patient and Public Partnership & Co-Director, Centre of Excellence on Patient and Public Partnership |
12h30-13h30 | CLOSING LUNCH – INTERNATIONAL SUMMIT |
START OF THE CANADIAN SUMMIT ON PATIENT AND PUBLIC PARTNERSHIP | |
13h30-13h50 | ROUND TABLE INTRODUCTIONS |
13h50-14h20 | PRESENTATION “Setting the stage for a Canadian coalition on Patient and Public Partnership” Alies Maybee, Founding Member and Patient Partner, Patient Advisors Network Carol Fancott, Director – Patient and Citizen Engagement, Canadian Foundation for Healthcare Improvement Caroline Wong, Executive Manager, Centre of Excellence on Patient and Public Partnership |
14h20-15h00 | Identifying Canadian STRENGTHS and NEEDS in partnership In an open format, participants will identify and brainstorm on what they consider key strengths, needs and challenges for partnership in Canada. |
15h00-15h15 | HEALTH BREAK |
15h15-15h45 | OPPORTUNITIES for a national strategy in patient and public partnership Given the strengths and the needs identified above, participants will brainstorm and prioritize key actions to mobilize the patient engagement and partnership community in Canada individually and/or collectively. |
15h45-16h00 | CLOSING REMARKS |
16h00 | SUMMIT CONCLUDES |
SPONSORS
This event is made possible thanks to the generous support of:

Location
Sheraton
An initiative of the Université de Montréal
Supported by
Direction collaboration partenariat patient
Faculté de médecine de l'Université de Montréal
Canada Research Chair in Patient and Public Partnership
CHUM Research Centre
Institut de recherche en santé publique de l'Université de Montréal
Canadian Foundation for Innovation