Patient and public engagement is growing, but evaluative efforts remain
limited. Reviews looking at evaluation tools for patient engagement in individual
decision making do exist, but no similar articles in research and health systems have
been published.
This document is intended for researchers, clinicians, policy makers, patients and citizens engaged in a partnership approach with the patients and the public of the Quebec SPOR Support Unit.
The objective of this document is to allow the research team to structure a clear mandate for the involvement of patient partners or members of the public in their research project.
This guide is designed to provide an overview of the various key elements of partnership with patients and the research public. The guide navigates from question to question about why, with whom, when, when, and how to implement a strategy of partnering with patients and the public.
