(1) Capture researchers’ experience with patient and other stakeholders engagement in research (2) describe the role of patients and stakeholders in research projects, and (3) describe engagement in research from the researcher point of view.
Consists of a participant survey. Pre-, and post-initiative interview questions to evaluate the use of in-person focus groups and online engagement within the context of a large public engagement initiative conducted in rural Newfoundland.
Based on the principles of community-engaged research this tool aims to quantitatively measure community engagement participation in health research.
To find out about the range of contributions that lay members are able to provide on Research Ethics Committees.
To review and score project plans to assess planners’ intentions to elicit community participation along five dimensions: WHO is to participate? In WHAT activities? And through which process or HOW, given the PROJECT CHARACTERISTICS, and the conditions in the TASK ENVIRONMENT?
To track the impact of public involvement in research in this sample from project inception through to completion where possible and, at a minimum, for complete stages of the research process (design, recruitment, data collection, analysis, dissemination). Identify the desired outputs and outcomes of public involvement in research in the sample from multiple stakeholder perspectives (e.g. members of the public, researchers, research managers).
To assess the organizational impact of patient involvement.