This document is intended for researchers, clinicians, policy makers, patients and citizens engaged in a partnership approach with the patients and the public of the Quebec SPOR Support Unit.
The objective of this document is to allow the research team to structure a clear mandate for the involvement of patient partners or members of the public in their research project.
This guide is designed to provide an overview of the various key elements of partnership with patients and the research public. The guide navigates from question to question about why, with whom, when, when, and how to implement a strategy of partnering with patients and the public.
https://www.patientlibrary.net/
This terminology is the result of the work of patients and professionals (educators and researchers) at the Université de Montréal, mainly grouped together at the Center of Excellence on Partnership with Patients and the Public (CEPPP) …
The Evaluation Toolkit is a resource designed for practitioners of the health sector, produced after the completion of a rigorous systematic review of patient and public engagement evaluation tools.
The platform’s resources include Canadian and international open access tools. Use them in patient and family engagement initiatives to improve health and health services. http://www.fcass-cfhi.ca/WhatWeDo/PatientEngagement/PatientEngagementResourceHub.aspx
The Evidence library, previously known as the invoNET library, has been developed for people with an interest in research into public involvement in research. It includes references and abstracts of reports and articles that cover: the impact of public…
Improve health outcomes through science-based care. (August 2011). http://www.cihr-irsc.gc.ca/f/44000.html
The Patient-Centered Outcomes Research Institute (PCORI), an independent nonprofit, nongovernmental organization located in Washington, DC, was authorized by Congress in 2010. Our mandate is to improve the quality and relevance of evidence available to help patients, caregivers, clinicians, employers,…